Losing The Fight & IBD

Hey folks…sorry I’ve been missing in action. I’ve been through a ton of life changes over the past 6+ months. I will catch you up on all that in a later post. But this one has been sitting in my draft file for some time now…since October. It caught me off guard when I saw it, actually. It’s made me think of all the IBD warriors that have lost their fight over the past year. It breaks my heart into a million pieces, especially since I lost my best friend, my mother, due to Crohn’s 6 years ago. These losses must keep us driven and active to spread awareness and acceptance of IBD and ostomies…and most importantly obtain a cure for us all.

Keep fighting the good fight, my friends.

Rest in Peace Kerrie

Rest in Peace Kerrie

“It comes with a heavy heart, that we lose yet another one of our IBD family, Karrie Jacobs, member of ibdjournies. She was a mother of 2 young ones. She was a true warrior. Word was it was stricture related and she couldn’t breathe, 911 was called and she was gone on arrival. Condolences to her family. She was a true warrior! When one chain is gone from our family, we all feel it. Please unify, let’s stand strong and uncover the seriousness of this disease. Karrie…Gone too soon!”

Catching Feelings

Hello World!

I have so much to catch you up on, yet I don’t have the patience or happiness to write about those things tonight. I do have a goal of posting about the Girls With Guts information table I helped out with at the last home DC Rollergirls bouts before I help with the next one (which is next weekend). So wish me luck with that and keep your eyes open for it!

I feel like a ball of emotions, anxiety and electricity. I don’t know if I am going to explode or implode. I think the world is getting to me. One minute, I think the past two plus years have made me soft as I feel much more emotionally weak than ever before. And damnit, I am an emotional beast! I am a wall that doesn’t crumble, but puts up more bricks regularly. You have to win my trust. You will not see me fall apart. The next minute, I feel angry and hardened because despite losing my parents and a failed marriage, this has been yet another time when I’ve really needed  people and support. During this time, so many have not just walked away but ran away. The biggest turning point really was my surgery. The before, during and after. My eyes were opened to so much and I learned some really hard lessons.

It’s been almost seven months since my surgery. A few weeks ago, my surgeon cleared me for work. He said I needed to determine the level and pace of my work as I have to build up my tolerance and energy. The last thing I want to do is hurt myself and screw up what I fought for these past seven months, a full recovery. I’m not quite there, but I was having days in which I did not need any pain medication all day long while I was up and about. Since then; however, my body has decided to pass so many kidney stones that I have lost count. I can tell you the number is in the double digits. But that fiasco is meant for another post. What I can tell you is that it’s been almost two weeks since I have passed a kidney stone but I am feeling as though I may need another round of antibiotics. Also, for a  few weeks, I guess during all of my kidney issues, I’ve noticed I would get lightheaded when standing and being really fatigued. This made sense because I felt like crap, had not been eating well because of how lousy I was feeling and my body was fighting really hard to deal with this kidney issue. And it continued to get worse. I was turning to coffee, which I do not drink because it does not agree with me, just to make it to a doctor’s appointment or to drive myself home from a doctor’s appointment. After pushing for blood work, I was diagnosed with iron deficiency anemia. Okay, not the first time in my 35 years I’ve had this issue and the remedy is to take iron supplements.  The problem is how awful iron pills make me feel. I’ve ordered some liquid iron in the hopes it will be much easier to tolerate. Needless to say, any part-time work I had planned on beginning, has yet to begin. My body just will not cooperate and I need it to now more than ever. I need it to cooperate for a long time. Time enough to set my plan in motion, follow through with my plan and become a normal (and I use that term loosely) settled person.

On top of all of this, I have also made some really poor decisions over the past several months. Emotionally, this has caused me tremendous grief. The dark and scary kind that people don’t return from. One particular situation, I will not elaborate the details on the interwebs, but I will tell you that I was hurt so terribly that every night for over a week straight, I sat in front of a bottle of wine and the perfect cocktail of pill bottles to do the trick. Thank the universe for a very small group of people who where able to help intervene and pull me back to reality. A reality in which I can now clearly see how emotionally manipulated I have been for some time. And this is impeding my ability to set my plan in motion.

My brain is telling me my plan is what I need. I need change. I need a clean slate. I need to remove daily reminders of the bad, the sad and the disappointment. I need to be on my own instead of alone. I need my body to cooperate. I need my fears of not being able to do all this on my own to disappear with the rest of the self-deprecation I feel from too many years of emotional manipulation. I know I’ve made the best decision and it’s time to follow through, damnit.

It is time to get this plan in motion…no reason to sit around and wait until I’m homeless before I figure it all out. Besides, the days are flying by and I have a ton to do. So what is this plan? Well, I’ve agreed to having the house put up for sale at the first of the year. This means I need to move and I’ve decided to relocate out of state. I want this 1,000% but I am struggling with some feelings about leaving behind the small circle of people I love, who love me back and I can depend on and trust. This makes me angry. I don’t want to leave behind these people, especially the littlest ones. I think about it too much and it feels like another impending death. As you can see, my head space is clearly in the negative right now. Perfect timing, Hollie, as per normal. How do you get your happy, self-confidence and motivation back when all of the above has happened, it’s that time of year that brings darkness in nature and the arrival of holidays and anniversaries that I would simply fast forward through if I could? I have to make all this good and happy happen during a tremendously difficult time. Today, I don’t know how I’m going to do it.

Tomorrow is a new day and I will try, try again.

My New Hobby Part 1

Hello World!

It seems each time I am ready to put some thoughts down for you guys, I’m apologizing. Before surgery, I felt like I had a deadline. I had to get to at least one entry a day for the WEGO Blog Challenge and if I could get to a second, that would be awesome! I really thought I could make all 30 entries before the 22nd. Well, I give myself an ‘A’ for effort and I will finish them hopefully before the next challenge in April! Ha ha! So again, my apologies, Dear Readers, for pretty much sucking at timely blogging.

I recently spent a weekend in Michigan that I am dying to tell you all about! It was so amazing that it will simply take me more than one entry to get to everything. I have pictures galore, too! You know how I love to share visuals with you guys! This is just one blog topic I have on a list of several, but…I’ve been back for almost 2 weeks now and have been detoured from sharing. Why? Well, it seems I have a new hobby.

So, what do you like to do for fun?
Well, my new hobby is to constantly make anguished noises. Aaaarrrgghhh! Rrrgghh! See! Pretty good, huh?

A new hobby, you ask? Well, not necessarily new. Let’s first rewind to August 2011 when I passed my first kidney stone. It’s a great story, as they all are, right? Well, I had been having urgency issues, but not the Crohn’s kind. The “I have to pee right now or I’m going to pee my pants”, kind of urgency. And when that happened, I never felt as if I was fully relieved. Now, for those of you who have experienced dehydration, you are familiar with that nagging feeling like you still have to go but there’s nothing in there. You have to guzzle a couple bottles/glasses of water, get yourself a bit more hydrated, have a real pee and all is well. But this wasn’t helping either. I knew these signs but I couldn’t figure out how or why I’d have a UTI (urinary tract infection). During one of those urgency moments, I passed the mother of all stones. I was kinda freaked out because at that moment, it didn’t hurt at all, it just, well, happened. However, the night before, I thought I was dying. I was having severe pain on my right side and I thought it was my hip alignment and all my “old lady” pain. I had two heating pads, one on the front and one on the back. I wouldn’t even let my boyfriend at the time get near me…he was a snuggler and I swear if he got near me, I would have punched him in the face. I basically overdosed myself on Advil and was in agony. He thought I should go to the ER and I was totally against it because I didn’t know what was wrong and I was not about to go sit in an ER for “nothing”. I’m such an ass sometimes…LOL!

urinary-system-of-man

Urinary System AKA Renal System (of Man)

A sample of the different types of kidney stones. Mine tend to look like the top and bottom right.

A sample of the different types of kidney stones. Mine tend to look like the top and bottom right.

Okay, back to passing this stone, I was in total disbelief. I took it to my computer and Google Imaged kidney stones and sure enough, it looked just like multiple ones on the screen. I had seen my mother’s stones before and it looked like them also. But, I had heard the pain of passing a kidney stone is worse than giving birth. There is no way the blinding pain I was in the previous night was all the pain there was to childbirth, right? So, I went to the doctor, looking all stupid with my stone in a Ziploc baggy and said, “I passed this. I think it’s a kidney stone. But I’m not sure what I’m supposed to do now.” (Thinking back on it, I’m laughing so hard, I have tears.) The doctor looked at me as if I had 3 heads and it was evident she did not believe I had passed this kidney stone. She explained there was no way I was not on the floor in the fetal position with blood present in my urine when I allegedly passed this stone. I seriously think she thought she was being Punked. So, she said she would send the stone to a laboratory to see exactly what it was, get a urine sample and have me scanned to see if there was any evidence of stones in my renal system. I dutifully peed in the cup. The scan was quick and back in the room I sat…waiting. Eventually, she came back into my room and was a brand new doctor. In a gentle, motherly voice she informed me I had passed the stone I brought in (DUH!), there was blood in my urine and the CT Scan film showed I had 11 stones between both of my kidneys (5 in the left one and 6 in the right one). Say whaaaaa?

CT Scan Machine

CT Scan Machine

CT Scan Film Showing A Kidney Stone

A CT Scan film showing a kidney stone.

I ended up at a urologist’s office and they too confirmed by looking at my scans and having the results of the compounds of my stone that I was full of kidney stones. Their plan of attack was to perform a series of the same procedure called a lithotripsy. It would take more than one treatment as they could only keep me sedated for so long. When I was told this procedure would break up the stones, I was in! Let’s do this! On the day of my first lithotripsy, I was dressed in a hospital gown, those super ugly socks they love to have you wear (and I brought my own fluffy socks to wear but wasn’t allowed) and a hair net. They started an IV where they gave me an antibiotic, Cipro, if my memory does not fail me. I was wheeled into the room where I was transferred to what looked like a hospital bed but the middle of it was like a water bed. My renal system (basically my bare butt) had to be strategically placed on the cold water bed section. They would use shock waves on the outside of my body to break up the stones. Luckily, they knocked me out for this as I needed to be perfectly still and my nerves would not allow that; however, it is standard procedure to sedate patients.

Lithotriptor

Lithotriptor

The next thing I know, I’m out of the surgery room, off the half-waterbed half-hospital bed, sitting up in a giant leather recliner. Apparently as I was still coming to, I was offered a choice of drinks and snack as I was sipping on a ginger ale and had a pack of crackers waiting to be opened. I felt more “drugged up” than I usual when coming out of a colonoscopy or upper GI endoscopy. While I was sitting up, looking wide awake and chatting with everyone, later I did not remember a thing…not even the ride home. Evidently, after I finished my drink and snack like a good patient, I was allowed  to change back into my street clothes, was given my discharge instructions and released to go home. Thank goodness for David that day! I think I asked him the same five questions 13 times on the way home. Two of them being, “How many stones did they get?” and “From which kidney?” The surgeon was able to treat four stones in my left kidney.

Part of my discharge instructions were to use a urinary hat to collect my urine each time I used the restroom. I was then to pour the contents of the hat through a strainer to collect any and all bits of broken-up stones, otherwise known as gravel. By the time we had made it back home, I had to use the restroom. I got all my supplies together (they gave me an empty urine sample cup in which to keep my findings). I relieved myself, which was slightly painful, but nothing major. Major came when I saw the color of my urine and nearly passed out; it was black. Now I know I didn’t remember much of what I was told regarding my discharge instructions, but I was pretty certain black urine was not mentioned. I immediately called the emergency number and they acted like everyone has black urine everyday, all day. It was no big deal. It would eventually clear up as would the pain. So I pulled myself together and strained and collected. It was quite shocking just how much gravel the four stones produced!

Urinary Hat

Urinary Hat

Urinary Hat Strainer

Urinary Hat Strainer

Kidney Stone Gravel

Kidney Stone Gravel

Did I have the rest of the stones treated? How am I doing now, two+ years later? Well, all of that will be covered in Part 2 of this entry. The long and thorough background I provided will help you understand Part 2. I promise it will not be as long and I will post it as quickly as I can, as I know you are simply dying to find out what happened next.

In the interim, and as always, thank you so much for dropping by and reading today’s entry. I hope you enjoyed it and at least learned something! Feel free to leave questions or comments publicly or privately! Until next time…

Sneaky Pharmaceutical Company

Hello World!

I know, I know…I’ve not been pulling my weight around here. There’s so, so much that I’d love to share with you about my personal life right now…but I can’t. Not until the dust has settled. All of this unrest has done a number on me mentally and physically. I’ve been super depressed, unable to sleep and unable to eat. Each time I try some Saltine crackers, my body rumbles for 2 hours then I’m stuck on the throne. All over a couple of crackers…so not worth it. Anyways, I’m taking it hour by hour and day by day. I will pull through this; unfortunately, I believe it’s going to get worse before it gets better.

Good news? Actually, yes! At the beginning of the month (August), I saw my surgeon for the big 3 month post-op appointment. It actually went very well! Woot! He examined my x-rays and then my back. I’m healing very well, which is a big deal as there was concern about my ability to heal due to my dear friend, Remicade. There is actually new bone growth already at the fusion site! This means I graduated from my back brace! Awesome but a bit nerve wracking…it was my safety blanket.  But so far so good! Dr. Dad (AKA Dr. Dix) told me to walk…just walk as much as I can. No PT or anything. The only issue is that I’m still in a lot of pain. Through description and reaction, we are able to deduce that it’s nerve pain and not pain specifically due to the surgery/apparatus/spine. See, my spine had compressed once the two discs decided to take a permanent vacay. The surgery placed spacers where the discs once were and this opened my spine back up. As a result, things have to be stretched back out, especially nerves. So I’ve got some seriously angry nerves right now and that is the source of my pain. I’m still on just as many pain meds as I was before surgery, which stinks. It could take a couple months to a year for these nerves to calm down, which stinks. But overall, my surgeon believes my surgery was a success and that in time I will be pain free. If that isn’t a reason to celebrate, I don’t know what is🙂 Yaay for me!

So, let’s address the title of this entry, “Sneaky Pharmaceutical Company”. I’ve been taking the medication Asacol (which I touched on in “Day 5: Aspiration”, should you be interested) since the infancy of my diagnosis, you know when it was Ulcerative Colitis. I was immediately put on Asacol, Bentyl and Prednisone. Through the years, one of those remained a constant, Asacol. I’ve taken 6 pills a day for what seems like an eternity. In the beginning, my doc had me take two pills three times a day. I can’t stand meds that need to be taken 3 times a day (especially antibiotics)…I’m no good at taking them and constantly miss doses. So you can imagine how excited I was when the doc said I could take 3 pills twice a day. Oh the little things! LOL

So what is Asacol? What does it do? Asacol is a 5-aminosalicylic acid, or 5-ASA, and it reduces the inflammation in the colon. Makes sense that this has been my main oral medication for my IBD, right? The specific drug Asacol does not have a generic equavalent; which is unfortunate because it is a very expensive drug. The good news was that a generic drug was on the horizon! With a generic version of Asacol right around the corner, Asacol’s manufacturers chose to pull the drug from the shelves and not renew it’s patent. Instead, they change an ingredient in the coating (NOT the drug itself), place the pill inside a capsule and give it a new name, Delzicol. What does this mean? No longer is there a generic just around the corner. Those with IBD who need this medication must continue to pay hundreds of dollars a month if they don’t have insurance!

Personally, I think this is awful! It’s sneaky and just not cool. Pharmaceutical companies are going to bankrupt patients!

Chrstina Matthies of the the Facebook page, The Crohn’s and Ulcerative Colitis Diaries: Living with IBD, posted the following article and video regarding this situation. Check it out here: http://www.bendbulletin.com/article/20130728/NEWS0107/307280363/. This was the first I heard of what was happening and I was livid!

Once my pharmacy could no longer get Asacol, I had to contact my GI’s office for a prescription of Delzicol. I was angry because he made me make and appointment and come in to see him “to review my treatment plan”. This made no sense to me. All of the other alternatives include Sulfa, which I’m very allergic to. Many IBD medications include Sulfa and as a result, I’ve always been limited to what I can take as part of my treatment plan. So why was he making me come see him? I would end up having to spend money on gas, pay a $6 bridge toll and a $15 co-pay to remind him that I’m allergic to sulfa! Times are tough and this angered me. It made me think that he was just as bad as that sneak pharmaceutical company. So, I decided that I was going to arrive to my appointment educated and ready to take him to task. The day came and when he asked what brought me in, I explained that I needed a replacement for Asacol. Don’t you know, he went on a tangent about how upset he was over what Warner Chilcott had done! He brought me in because he wanted to check on me…the last time I’d seen him, was for a bunch of test results because I had been having lots of issues. Dr. Epstein brought me in because he cares. That’s pretty cool and deep down made me feel a little like a jerk for doubting him.

So, I’m officially a Delzicol patient! Wanna know the first thing I did when I got home with my prescription? I conducted the test that Erin Matlock did in the above video. Here are my pictures! Enjoy!

Even the manufacturer's bottle looks the same as Asacol's! Same colors too! Unbelievable...they didn't even try to fool us!

Even the manufacturer’s bottle looks the same as Asacol’s! Same colors too! Unbelievable…they didn’t even try to fool us!

The capsules are almost the same color as Asacol. If you shake them, you can totally hear the pill inside.

The capsules are almost the same color as Asacol. If you shake them, you can totally hear the pill inside.

Hmmm...wonder what's inside?

Hmmm…wonder what’s inside?

Oh look at that! That little guy sure looks like Asacol to me, minus the writing. I consider myself an expert in Asacol identification since I've taken 6 a day since 1998!

Oh look at that! That little guy sure looks like Asacol to me, minus the writing. I consider myself an expert in Asacol identification since I’ve taken 6 a day since 1998!

Thank God for insurance! This is only on month's supply!

Thank God for insurance! This is only on month’s supply!

P.S. So what do you think? Do you think Warner Chilcott were genuine in their pulling of Asacol from pharmacy shelves for their replacement drug, Delzicol? I’d love to hear your take on this situation.

As always, thank you so much for stopping by!❤

Emotional Venting

Hello World!

Just wanted to share a little emotional venting which I posted on Facebook. I wanted to make sure you guys received my sentiments as well. But first, here’s a few pictures from today’s Remicade treatment.  As always, thanks for stopping by!

Remicade drip AKA "Mouse Juice"

Remicade drip AKA “Mouse Juice”

Just one stick!

Just one stick!

Me August 1 2013

Me August 1 2013

This evening’s Facebook post…

May be a little TMI for some of you…so you’ve been warned. This goes out to my ‪IBD‬ family. For those of you who are hurting, in pain, tied to your bathroom and can’t seem to reach remission, I just want you to know that I am here to offer support 24/7. See, I was fortunate enough to only truly suffer for two years before I found my miracle drug in ‪‎Remicade‬. If this didn’t work, my only option was surgery. I stopped running to the bathroom in the middle of the 8 hour infusion. That is how quickly it worked for me. It’s not perfect but it’s what I’m holding onto in order to achieve normalcy outside of my IBD. I know there are so many of you out there that are barely holding on. Keep fighting and don’t lose your spirit!

After reaching a breaking point for me this week, my nerves and emotions had my guts in a total wreck with my ‪Crohn’s‬ attempting to rear it’s ugly head as I’m a week late for my treatment. I could not keep any solids down and liquids just kept running through me. But today was Remicade day and my body has quickly given in to the drug (or “mouse juice” as I like to call it  squeak! squeak!) and I’m already tolerating solids and output has begun to slow. I desperately needed this as my body was slowing down and I could feel how weak I was becoming. The emotional stress I have been under was crushing. If Remicade didn’t work so well for me, I would probably be hospitalized this weekend. I know my limits and I can’t deal with that right now.

I hope each and every one of you find your miracle cocktail and sooner rather than later. In the interim, hang in there. It will get better…it has to, right? I can appreciate your ‎pain‬‪‎suffering‬‪‎depression‬ and ‪helplessness‬. I promise to always be an outlet for you to vent or ask questions…even as I deal with my Remi side effects for the next few days…I will always be here for my IBD family as you have been here for me. Okay, emotional/mushy/rant over🙂

Ostomy Awareness

Hello World! Thanks for stopping by!

My apologies for my lack of activity. I’ve be a bit overwhelmed with my recovery from back surgery. I’ve also got a thousand “just life” issues I’m dealing with….I don’t want to bore you with all that; however, in hopes of finding some way to feel a bit stronger emotionally these days, I just might spill my guts here later.

But all that is not the point of this post. I’m hear to share an article with you and spread some ostomy awareness.

First, take a look at this article:  http://www.wcpo.com/dpp/news/region_west_cincinnati/price_hill/cincinnati-police-hope-to-sway-teens-with-photos-of-colostomy-bags-paralyzed-shooting-victims

As a result of this article, many have been offended, including myself. Actually as a teacher who has quite a varied background knowledge of children, behavior and communication, I was quite horrified. My IBD community/family banned together to turn this into not just an angry fight, but an opportunity to educate and advocate. Douglas Yakich, an ostomate and iReport writter for CNN has developed the folowing petition:  https://www.change.org/petitions/cincinnati-police-department-apologize-for-their-inadvertent-discrimination-towards-ostomy-patients?utm_campaign=share_button_action_box&utm_medium=facebook&utm_source=share_petition

I support this petition 1,000% and I hope that you do too! Below is my facebook response:

Hey folks! I just posted a petition in which I am very passionate about. I would appreciate your signature and so would the thousands of others who were offended by the Cincinnati Police Department. Yesterday I posted an article regarding this department’s program to help stop violence. In doing so, they use ostomies to attempt to ‘scare straight’ current and future criminals. They also attempt to correlate walking with a limp if having an ostomy.

I take super offense to this for 4 reasons:
1: An ostomy saved my mother’s life! It gave her almost 20 more years to her precious life before passing in Jan. 2008. If you knew my mother, you probably didn’t even know she was an ostomate and she certainly did not walk with a limp as a result.
2: While I am not an ostomate, there is no telling what my future holds as a Crohn’s patient. At any point, my disease could rear it’s ugly head, wreaking havoc on my guts, requiring the need for an ostomy. This need is almost always a life or death decision. Studies have shown that IBD may worsen with age and I may require an ostomy in my future.
3: This article has offended many of my friends and a community in which I am proud to be a part of. I’m a very loyal person and when you hurt something I care about, you also hurt me.
4: Over the past year/year and a half, I have tried my hardest to up my game in the world of IBD advocacy. I’ve not done the best job as I’ve been dealing with my back issues, but nonetheless, this is my passion and my responsibility to continue spreading awareness.

So I ask you to please sign the petition I posted – Cincinnati Police Department: Apologize for their inadvertent discrimination towards Ostomy Patients. Attached to this petition is a very well written and thoughtful letter which expresses the reasons for this important campaign.

Thanks friends and family! Love to you all!

Alone & Loneliness

Hello World!

This is my first check-in since before surgery! I know it’s off topic from the 30 Day Writer’s Challenge, but as promised, I will catch up soon. I’ve just been having some interesting feelings lately, which my assistant surgeon identifies as depression. Now the big “D” is something I’ve dealt with for a long time due to my Crohn’s Disease and I take medication daily for treatment. However, I did not ask for a temporary increase in medication with this because I know what it is and I know it will pass (knock wood).

I guess it all starts with the fact that I broke up with my boyfriend of almost 4 years about a month before surgery. While everyone called me an idiot for now not having a live-in support system; especially since such was called for during my first week at home after surgery, I couldn’t use him in that way. Although he is such a stand-up, respectful guy, he comes over most evenings, checks on everything including the animals (lets the dog out), getting me “fresh” ice, collecting all the trash, etc. He’s really been awesome and I’ve not been able to thank him enough. I’ve had a handful of friends who have helped out although most have gone back to their normal lives. I must acknowledge James for pet sitting while I was in the hospital and Dawn (who was finishing a semester for her doctorate….yes doctorate) for spending that first week with me. Lastly, there’s Amanda who brings me food! What an angel!

So although I have, what I feel like, two good friends I can rely on…that’s just it. No mom, no dad, no family. I’m doing this primarily on my own. And you know what, it sucks! It’s really, really hard. The hardest is taking care of my pets. I’m on the second floor and they are on the first floor. (The second floor is an addition with it’s own HVAC system so there is a door at the top of the steps which means no animals upstairs). So I feel terrible that they are getting zero attention. I try to spend time downstairs but the fact that I’m not allowed to clean, I just can’t stay long or else I will start cleaning. My house has not been cleaned since right before surgery and I have three animals who job is to constantly shed hair! LOL A cleaning company starts next week (Thank God! Well actually thank you Chad!)

Lastly, I started seeing someone unexpectedly right before surgery. Well that didn’t last long after surgery…and my heart is really broken over this one. It was a “talk on the phone for hours” relationship…you know that kind where you are kinda perfect for each other but timing/life refuses to let it happen. I’ve been pretty crushed.

So I feel alone most of the time. As an “only child” I like my alone time but this is too much for too long. I feel lonely and that feeling is no fun.

Day 17: Wordless Wednesday III

Hello World!

Today’s prompt was fun! I’ve never used this site before and I tried so many different things I couldn’t decide on a favorite! I hope you like it!

I hope everyone is feeling well! Thanks for stopping by!

Today’s Prompts:

  • Go to http://www.wordle.net/ to create a word cloud or tree from a list of words associated
    with your condition, blog, or interests. Post it!

So here it is! Unfortunately, I could not get the actual pictures to post live so you will have to click on “Wordle” below. Let me know what you think!

Wordle

Day 16: Misinformation

Hello World!

Ready to play a little game? If so, you will enjoy today’s prompt! Thanks again for stopping by! You have made my day!

Today’s Prompts:

  • Tell us 3 things that are true a bout you, your condition, or your Health Activism. Tell us 1 lie. Will
    we be able to tell the difference?
  • Bonus points – share your 3 + 1 as a poll on FB. Share the results!

Today we are going to play a game of ‘3 Truths, 1 Lie’!  Let’s get started…

  1. I wear a size 9 shoe.
  2. I can drive a manual transmission.
  3. The Lily is my favorite flower.
  4. I want to obtain a degree in Psychology.

Can you spot the lie?

footwear,heels,pumps,shoes,partywear,fashion,lifestyles,accessories

1.   I wear a size 9 shoe. Truth! I, like many women, love shoes and own way to many of them!

automobiles,cars,driving,gear shift,handles,knobs,transmissions,vehicles

2.   I can drive a manual transmission. Lie! Only automatic transmission vehicles for me!

3.   The Lily is my favorite flower. Truth! More specifically, the Stargazer Lily, is my favorite flower.

academic,caps,certificates,degrees,diplomas,graduations,ribbons,students,tassels

4.   I want to obtain a degree in Psychology. Truth! I would love to go back to school to earn a Master’s degree in Psychology! Maybe one day🙂

Day 15: Sharing

Hello World!

I have a very special blogger to share with you today! She’s one of a kind and I love her humor! Enjoy!

As always, thanks for stopping by! Feel free to comment below! Love you all!

Today’s Prompts:

  • Comment! Pick someone else’s blog post and write a comment to them. Write that comment as
    your post for today and link back to them to let them know you were inspired.
  • Participate in our guest post swap day. Email us (editorial@wegohealth.com) by April 8th to be
    paired and we’ll connect you with another Health Activist.
    Today’s post was recommended by Kristen of @running4autism

I’m going to tweak today’s prompt a little and simply introduce you to one of my favorite bloggers who has amazing Facebook presence. Her name is Christina Matthies and she is the author of, “The Crohn’s Diaries: Living Sick One Word at a Time.” According to her blog, “I have “moderate-to-severe” Crohn’s disease and have had three small bowel resections. I am a married mother of two, battling daily abdominal pain, fatigue, strictures, adhesions, and inflammatory bowel disease (IBD) arthritis. I know what it’s like to fight every day against a “hidden” disease and to know that I will be sick for the rest of my life. That’s why I created “Living Sick” at LivingSick.com–a place to share blogs, thoughts, inspiration, articles, advice, ideas, and support.”

Christina is very active on her Facebook page, ‘The Crohn’s Diaries: Living Sick with Inflammatory Bowel Disease-IBD’. Here she keeps us updated on how she’s feeling, posts questions for participants, talks about her animals and shares great memes! She stays on top of the conversations in the threads which makes them feel like actual conversations. Christina posts great articles and she is always making me laugh!

So cheers to Christina, her blog and Facebook page! You are doing great advocacy work & I simply adore you! Now please read/follow her blog,  ‘like’ her Facebook page and join in on the fun!

Blog: http://livingsick.com/

Facebook:  https://www.facebook.com/TheCrohnsDiaries?fref=ts